Writing daily about my journeys through books, movies and plays along with poetry, story, or an occasional wander into ideas, opinions or rants.
Sunday, March 30, 2014
The Challenge Came Later
“You have epilepsy.”
This diagnosis was not tossed down like it was a challenge.
I most certainly didn’t hear it as a challenge.
My memory of that day in 1967 - or was it late 1966 - is that I was sitting on a stretcher, a hospital gown on, Dr. McDougall standing in front of me in his white doctor’s coat to deliver this information to me. Is this an accurate image in my memory?
I have no idea. Unfamiliar post-ictal haziness didn't register much.
Epilepsy merely became something outside of me ~
that had nothing to do with me.
A seizure, when I had one, was epilepsy's only indication of it's presence.
And I didn’t see any seizure. I could only feel the after effects.
I couldn’t even see the effects on my family.
The challenge came ~ but not until 1978, ten years later.
The challenge came from the outside
from the successes of others with a different disease.
I grabbed it like a dare in a school yard game.....
if you can get better, so can I. So there.
Do I still have epilepsy?
Definitely ~ and I have the Electroencephalogram (EEG) from last year to prove it. But over fourteen years have passed since my last grand-mal seizure (tonic clonic in today's clinical terms).
Does epilepsy affect my life?
Definitely.
In the boundaries and organization of my life ~ and life is pretty darn good.
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