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Saturday, May 9, 2026

A Hard Choice

It was a tough one. 


A community Choir event ~

pre-scheduled


A four year old’s birthday party

sudden opportunity this morning


Both set for the same time:

no choice?


Both events involved singing:


Beautiful soaring music with

Regina’s Sisters in Song


Happy Birthday song around 

the kitchen table with family!

(No photo available)


“Those who wish to sing always find a song.”

~ Swedish Proverb

Friday, May 8, 2026

Belief Has No Schedule

Schedules are not pretty 

lines, boxes, 

spread sheets and graphs. 


They are handy, 

but don’t fit into real life. 


Two events that occur at 

the same time on the same day - 


how do I choose? 

Will someone be offended

when I cancel one of the duplicates?


When it comes to 

seizure activity for any reason, 

schedules dissolve instantly


Epilepsy hasn’t read the memo 

about ‘a most convenient time’


So we plan, we avoid risks, 

we take our meds, 

we shape our lives and 

never stop believing 

in our own strength.


“The key is not to prioritize what’s on your schedule, 

but to schedule your priorities.”

~ Stephen Covey, author

(1932 ~ 2012)

Thursday, May 7, 2026

Gate Keeper

Epilepsy walks with me 

using the same feet that 

carry the rest of my body.


To understand that was not easy. 


Epilepsy was in my brain. 

Take a pill and seizures will 

stop being unpredictable.


Slowly, awkwardly, I learned 

that life with epilepsy had 

to become a relationship.


A relationship of respect.

Not mutual, but very much

my own responsibility


To understand that was not easy.


Epilepsy is in my brain,

without its own intelligence.

So I am its gate keeper.


“This is your life. You are responsible for it. 

You will not live forever. Don’t wait.”

~ Natalie Goldberg