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Showing posts with label Medication. Show all posts
Showing posts with label Medication. Show all posts

Tuesday, April 7, 2026

Priorities

Temptation to change the world 

is merely a wisp of a dream,

too great a task, 

and too messy. 


I walked to day, 

just to the grocery store 

for my prescription refill 

and bananas. 

I added a Bosc pear because 

they taste good. Curious, 

I took my blood pressure - 

the machine showed ‘optimal’.   

Then I spoke to a cheerful pharmacy tech 

about the state of the weather outside. 

Paying my bill, I packed my groceries

and my medication into my bag, 

zipped up my jacket and headed home. 

I looked up to check the clouds ~ 

rain this afternoon or possibly this evening? ~ 

Three blocks to walk, I skirted all the puddles,

rain stayed in the clouds. Home safe and dry. 


Temptation to change the world 

is merely a wisp of a dream,

too great a task, 

and too messy.


“Action expresses priorities.”

~ Mahatma Gandhi

Sunday, March 26, 2023

Epilepsy Awareness Day/Purple Day for Epilepsy - Re-post from March 26, 2022

One an hour or more, a couple a week, maybe once every few weeks or months - who knows when?! or managed successfully with medication and/or surgery - or not.


Living on the alert

Getting up in the morning

Going to bed at night

Taking medication daily

Being aware of surroundings

How rested you are - or aren’t.


All kinds of seizures!

Little ones, big ones ~

not all falling down ones

Each one knocks a brain sideways

vibrating it for minutes, hours, days or more after the seizure has vanished.


"It's more than just having seizures."

~ Lindsey Hess


Purple Day established in 2008 by Cassidy Megan of Nova Scotia


**Some minor updates to this repost, but a seizure's still a seizure.

Saturday, March 26, 2022

Epilepsy Awareness Day/Purple Day for Epilepsy

One an hour - or more

A couple a week

Maybe once every few weeks

or months - who knows when!

or managed successfully with

only medication or surgery.


Living on the alert

Getting up in the morning

Going to bed at night

Taking medication daily

Being aware of surroundings

How rested you are - or aren’t.


All kinds of seizures!

Little ones, big ones ~

not all falling down ones

Each one knocks a brain sideways

vibrating it for minutes, hours, days or more

after the seizure has vanished.


“It’s more than just having seizures.”

~ Lindsey Hess


 Purple Day established in 2008 by Cassidy Megan of Nova Scotia

Friday, March 26, 2021

Many Shades

Epilepsy ripples through humanity. A pretty basic statement. How then do I fit that into my own story? I am but one of many with epilepsy and our stories are all different. Not only the details but the type of epilepsy we each own. The extent of how our daily lives are affected. The only commonality we each have is that epilepsy is an electrical brain disorder with many causes, and some diagnoses have no known cause. My epilepsy is the ‘no known cause’ kind. My story then is an answer to the question: What besides medication can I do to support my control of some of my life? Simple: Stress management, take my medications as ordered, realize and dampen triggers to my seizures and regular sleep hygiene. My story with epilepsy management is much greater than the disorder or just taking medications. Some people's stories may be similar to my own. The stories of others are much more detailed and frightening than mine. Unmanageable and atypical seizures, multiple medications, inability for regular or meaningful employment, surgical treatments, drastic mood changes, suicidal ideation, marital problems and learning disabilities. Too much drama? Scary? For those that live with it, it definitely is.


Today - March 26th, is an annual day for Epilepsy Awareness. Each province and state has an Epilepsy Organization. The Canadian Epilepsy Alliance is Canada’s national organization for epilepsy information.


“The human spirit is stronger than anything that can happen to it.”

~ George C. Scott


Resource:  https://www.canadianepilepsyalliance.org

Thursday, February 13, 2020

Taking a Break ~ 2

There’s a funny thing about the routines we have at home. They only seem to exist at home. Sticky little things that tag along in our suitcases and in our minds. When we go away, even if we take our ideas and ordinary things on a trip ~ long or short ~ they are out of place. Their place has been left behind in the structure we’ve created for ourselves within our own four walls. I can hear many voices, including my own, saying: “You’re on kind of a holiday. Leave home at home.” I do have trouble with that to a degree. First of all I take medication. That is one routine that should not be sidelined, whatever the holiday or vacation or 'away from home' time is. Being away from any health care team, besides not being able to enjoy a new environment, can create another set of problems that have nothing to do with fun.

Medication aside, some of our routines, rituals or habits can be integral to what we enjoy doing. I have learned to allow the timing to be flexible. Make the time used shorter. In regards to my blog entries, I find new topics for writing. That would be true for any artistic endeavour. And of course there is getting some created in advance so a quick click of my finger will post the prepared written work. There are many solutions individual to each person and situation. But there can be some guidelines:
  1. Be flexible. 
  2. Enjoy wherever you are.
  3. Eat different food
  4. Don’t have too many guidelines ~ or any at all
Today I’ve watched talk shows, the news and taken my grand-dog, Eva, for two walks. The second one was pretty short! Neither of us was happy about the cold rain soaking us. We squeaked inside the door, and towelled off before the wet and mud could get through the house. Paws wiped, raincoats (Eva’s and mine) hung to dry, my shoes left at the door we settled once more. Eva to her bed on the floor and me on the couch with the TV remote close at hand. When one is retired, there is seldom an official ‘vacation’ time, so any time……….Excuse me, lunch time……..

An hour (or maybe more) later ~ Pardon me. I took a break for some hot soup, a sandwich, texting with my son. I have to get back to the TV or a nap or both. 

“Almost everything will work again if you 
unplug it for a few minutes…..including you.”
~ Ann Lamott


Tuesday, May 15, 2018

A Thank You Note

It was Nurses Week last week. I did not write anything about nurses or honouring nurses. Not even complaining about nursing. But I did work in nursing. At the beginning of this year, going in depth about things - anything - has been a challenge that was laid on my table. The concept of a depth year didn’t originate from me. That would have involved acting on all of the swirling thoughts in my head. It did come from a CBC interview. Mary Hynes, on Tapestry, one Sunday afternoon, interviewed David Cain from Winnipeg about this idea of going in depth. Not buying anything new. This seemed like a great idea. I tend to be really tight with my money - until I’m not. I suppose it is more like thinking about being tight with my money.

So I started with that concept. Not buying anything new. As days and weeks progressed, I began looking at more things in depth, especially my nursing career. My retirement from nursing approaches ever more closely as I turned seventy years old in November of last year. I am still interested in and concerned about nursing. The part of nursing that interests me is the attitude of nursing. It sounds rather flip to talk about caring about and for our patients. Spending time with our patients. Today’s nurses are often instructed and encouraged to use the word ‘clients’. I do believe that this simple wording change moves us away from the attitude of nursing.

I have cared for individuals in most areas of nursing. Nursing in paediatrics and obstetrics have not interested me, but I have experienced the other side of paediatrics as a young teenager and of obstetrics as a young mom. Of course I did work in both areas in my nurse training years. Despite the little exposure in these two fields, I have cared for individuals from 1 1/2 years old to 108 years old. All along this age continuum, each person has required different care, but with the same attitude of nursing. Sick people need to feel safe, emotionally and physically. Each age, each level of ability, and many times each sort of vocabulary used, will involve different lengths of time. This is especially true for the very young, the very old, people new to being ill, chronic illnesses including addiction and mental health, surgical as opposed to medical issues, end of life concerns. Of course there are new moms, again including addiction and mental health concerns. Bedside nursing will require either more or less time involvement. Community referrals, and therefore community nursing, also requires more or less time involvement. In my present employment in Addictions Nursing at the Detox level, our age range is 19 years to over 80 years old. As the age increases, medical issues increase, infirmity increases and maybe also cognition may decrease. Nursing care requires constant shifting into what models of care are effective for each client (there’s that client word). Is this more psychiatric, geriatric, just out of adolescence or someone who is basically healthy? What nutritional issues need to be addressed?

Going in depth about the attitude of nursing has spoken to my inner beliefs and my personal nursing practice. As nurses we are challenged to fit the mold of whatever system we are in, what ever business model is in place, and unfortunately how some in medicine still see the role of nurses. That role is too often a ‘do as you are told’ attitude rather than a collaborative attitude. In any hospital, treatment centre or clinic nurses work in, our attitudes and practices of nursing mesh with best practices, the mission statement from the board room, as well as policies and protocols to provide emotional and physical safety our patients. When they do not mesh, it is a huge challenge for nurses to work with their patients, or clients, in the manner they were trained to and believe in. But we do it. 

We provide skilled, compassionate nursing care without worrying about recognition. On a daily basis. Recognition is not part of a genuine nursing attitude, but it feels so good when it comes. It comes with a hand lettered card saying Thank you. Saying…you saved my life.  Saying….I remember when you walked me through that anxiety attack.  Saying…Thank you for taking care of my daughter ….my son….my dad….my mom.  And so many other sayings each of us, individually or as a group, hear. Little threads outside of the larger health care settings telling us that the nursing practice we do is more important than any political health crises in the news.

Nurses do more than take blood pressures, record data on computers and give medications. We support each individual in the throes of their acute illness, in their abilities to step forward in their own recovery from illness, educate them about individual health care issues. We are not technology, we use technology. We are not secretaries, we do some documentation. We are not specifically pharmaceutically minded, we administer physician ordered medications. We do not formally diagnose our patients, we do recognize signs and symptoms. We save lives and we escort individuals through their final days. We support individuals as they move through a variety of severe diseases and conditions.

I am so very grateful to have worked with so many different nurses and in different areas over the last 50 years. You have each contributed such great depth to this profession! Thank you all for your wisdom, your support and your willingness to spend time and to deeply care for your patients.

“Nursing is an art…It is one of the Fine Arts: 
I had almost said the finest of Fine Arts.”
~ Florence Nightingale

Wednesday, April 13, 2016

Harm Reduction in Canada

My posts have been poetic, story, musings and my opinions. My opinion pieces have been about epilepsy, addictions and the state of affairs in the world. I have offered book reviews, movie reviews and an occassional play review. My life is pretty full and interesting.

Today’s post is inspired by an hour long seminar about Suboxone maintenance and Opiate addiction. Both topics can fill much longer than an hour, but for today a small group of health care professionals gathered to listen to a presentation about Suboxone, the medication we use for opiate withdrawal at the Detox where I work.

So much has been learned about the brain and still there is more to learn. For this nurse, brain function and the brain changes that occur in any addiction is the most important part of any level of addiction care. From those that work in street clinics and community teams to those of us employed in withdrawal managment or hospitals to the counselors, social workers and nurses that work in treatment centers across this continent, we are all working with individuals with varying levels of brain dysfunction. Although neuroplasticity can rebuild some of the damage, that rebuild will take years to complete and only with long term life stability. 

Long term opiate abuse has increased in Canada by leaps and bounds with the development of a variety of narcotic pain killers. The advent of the drug Suboxone (buprenorphrine/naloxone), has allowed those addicted to the longer acting opiates, to complete a withdrawal process, because of how it works in the brain at the level of opioid receptors within the brain. Brain changes also occur in long term abuse of any of other drugs whether prescription, illicit drugs, or alcohol.

Possibilities for pharmaceutical assistance in aiding those with opiate addiction were expanded. Problems arise with matters of funding for continued therapy, availability of clinics and pharmacies that manage Suboxone and the stability of individual life styles. These problems occur far too frequently, barriers yet to be addressed effectively. I continue to hope that these barriers are recognized and addressed.

“The hard things in life, the things you really 
learn from, happen with a clear mind.”
~  Caroline Knapp, Drinking: A Love Story

Thursday, September 24, 2015

A Simple Remedy

There are many strange and wonderful gadgets and therapies in the ever widening world of health care.
Bells and whistles to call for help or to help the nurse.
Beds that lay flat or raise or lower searching for comfort and for ease.
Medicines that calm fuzzy nerves, dull shooting pains or bring a long day to darkened close.
But the most magical and cherished of all is the plain, beige, soft flannel sheets warmed to not quite hot ~ soft warmth sinking through skin deep into bones that cry out with cold, muscles cramping with pain or feet turned to unyielding blocks of ice ~ blanketing, cosying, warming and calming.
Warm flannel blankets, wrapped ‘round in hugs, bring smiles and deep sighs, trusted always to bring relief even from tears of sadness, grief or despair.

“The most complicated skill is to be simple.”
~ Dejan Stojanovic

Saturday, March 22, 2014

Epilepsy Adjustments


Pharmaceuticals ~
Tools to trade 
unruly movement
for some predictability

Saturday, March 8, 2014

One View Expanded

This story was written in under 10 minutes at Writers Group yesterday afternoon. The exercise was to write about a still life composed of a tipped over kitchen chair, a pashmina draped untidily over the chair and a folded road map lying on the floor by the chair.

First Picture ~
It was far too obvious. The kitchen chair tipped over as though ‘accidentally’ placing itself on the floor. Mother’s beautiful turquoise pashmina - thank heaven’s it wasn’t her good one - was slung quickly over the rungs. I guess he must have heard the door and not had time to take it with him. It seemed tangled and would have dragged the chair across the floor. Too noisy! But the map? What is that child up to now?

Caving! Her young son was always rearranging furniture and, finding a map, would make a scene like a place he found on the map. This time, he was in the Guadalupe mountains where caves were tucked all over and the sky turned deep turquoise just before dusk.  Joel had watched enough National Geographic on Knowledge Network to know all of these details. Joel’s mother also found the crumbs of a cookie or sandwich he had been eating while taking his trip to this other world.’

~~~~~

After the fact, it occurred to me that when there is epilepsy in the household, a fallen chair would not bring an image of trying to make a cave and play act at caving. So this morning I penned this next piece: 

Expanded View
As Joel had grown up, his seizures had become less frequent and less intense.  He had responded well to medication from the beginning. The potential for seizures was still at the forefront for his mom, Shannon. Dr. Clark, their paediatrician since Joel had been born, had suggested that this may happen, that Joel could grow out of his seizures, although warning that it may not. Much would depend on how well his response to treatment was and how well his health care was managed. Dr. Clark sounded awfully strict, but his strictness had proven to make life much more manageable.

So, Joel’s mom Shannon had never been certain. She still made certain about medications, sleep patterns and not too much stimulation for too long. That did cut a few birthday parties short, or kept group activities small, but so much better than a seizure in the middle of festivities.

While some parents were focussing on math skills or music practice or all the running about for classes and games, Shannon and her husband, Mike, were coaching Joel about coping skills. It really had become second nature to the family. Progressing in school, home and community were continually reinforced. Shannon was under no illusion that Joel would grow out of the epilepsy that he carried so stoically. 

Smiling, she recognized the cave was an upturned chair, with the pashmina that covered it all, and the map. Joel had not made epilepsy his identity. He was really an adventurer, with a bit of a heavy pack to shoulder.

Saturday, January 26, 2013

Epilepsy is Invisible

Epilepsy, 

chronic 
neurological
invisible
not really there?
as long as it is controlled
Should we hide from the public eye ~ 
just in case.....

Epilepsy
caused by anything 
that affects brain function including
scar tissue
head trauma
altered brain chemistry 
idiopathic: no known cause!  

no known cause 
no known cure
the individual?
vulnerable, powerless and alone.  

Cures - nothing 
broad based
standard
across the board.

Conventional medication the only solution?
‘you’ll have to learn to live with it.’??
but only part of a solution

many of us with epilepsy 
do learn to live with it
as do our families.

Living with epilepsy means
knowing ~
what kind of seizures 
how predictable they are - or not
who will be there to help us with 
recovery from seizures ~
letting us know 
where we are
what happened
when it happened

what spaces in time to live seizure free?
an hour?  
a day? 
a couple of weeks? 
More? 
Less?
so the control epilepsy holds
is a small as possible.

Living with epilepsy means
medication once or many times a day
one or more medications
surgery
recovering from surgery
so the control epilepsy holds 
in our lives is minimized.

And in all this, 
we wish to share and participate with
family, 
friends, 
employment, 
community

“Men think epilepsy divine, merely because they do not understand it...
We will one day understand what causes it, and then cease to call it 
divine.  And so it is with everything in the universe.”
~ Hippocrates

BC Epilepsy Society
Phone: (604) 875-6704
Phone: (778) 533-0790 (Victoria Office)

No longer active: 
Victoria Epilepsy and Parkinson’s Society

Author's note: Edited July 27, 2024