Pages

Showing posts with label Disease. Show all posts
Showing posts with label Disease. Show all posts

Tuesday, June 25, 2019

Attitude Changes Stigma

I’m thinking about stigma this morning. On a bright summer day when the wind is calm and the sky is blue complete with two swallow tail butterflies flitting past to the next flower. So how does that work? Sweeping my patio of all the debris the wind of the last few weeks has blown in, I let my thoughts wander. The winds had also spread some of the mulch for the gardens into the cracks and corners of the patio blocks. Spider homes webbed behind my storage bin. You see, my wandering thoughts were also about the stigmas towards a variety of chronic diseases and conditions ~ addiction, epilepsy, diabetes, cancer, mental illness, etc. and on and on ~ burdened by the attitudes of stigma. Recovering from or living with any chronic condition is enough of a challenge in and of itself. Especially if it is very fragile and difficult to manage while trying to enjoy an interesting and rewarding life at the same time.

The attitudes of stigma are like the crusted leaves, fine dirt, crumpled bits of paper and even dry discarded flower petals nestled on my patio. These attitudes, much like my patio debris, have come from somewhere, piling up in corners and crevices to be ignored until a broom comes along and sweeps it all up. But is stigma that neat? Can we just sweep stigma up and toss it in the garbage heap, in the compost or under the hedge? I don’t think so. 

Stigma resides in the cracks and crevices of our minds and heart. Where has it come from? Our own experiences with watching someone live with chronic disease? From the sometimes dubious lessons learned on the playground without challenge by any other knowledge? From gossip and conjecture in ordinary conversation? Certainly from many more people, places and situations I can suggest here. No, banishing such long held beliefs and attitudes is not as easy as sweeping a patio. Recognition of the attitude of stigma and deciding if there is any value to nurturing it any longer begins this very personal journey. With willingness of heart, changing even a long held attitude can be done.

“…the issue becomes not whether a person has experience 
with a stigma of his own, because he has, but rather 
how many varieties he has had his own experience with.”
~ Erving Goffman, Stigma: Notes on the Management of Spoiled Identity

Tuesday, May 15, 2018

A Thank You Note

It was Nurses Week last week. I did not write anything about nurses or honouring nurses. Not even complaining about nursing. But I did work in nursing. At the beginning of this year, going in depth about things - anything - has been a challenge that was laid on my table. The concept of a depth year didn’t originate from me. That would have involved acting on all of the swirling thoughts in my head. It did come from a CBC interview. Mary Hynes, on Tapestry, one Sunday afternoon, interviewed David Cain from Winnipeg about this idea of going in depth. Not buying anything new. This seemed like a great idea. I tend to be really tight with my money - until I’m not. I suppose it is more like thinking about being tight with my money.

So I started with that concept. Not buying anything new. As days and weeks progressed, I began looking at more things in depth, especially my nursing career. My retirement from nursing approaches ever more closely as I turned seventy years old in November of last year. I am still interested in and concerned about nursing. The part of nursing that interests me is the attitude of nursing. It sounds rather flip to talk about caring about and for our patients. Spending time with our patients. Today’s nurses are often instructed and encouraged to use the word ‘clients’. I do believe that this simple wording change moves us away from the attitude of nursing.

I have cared for individuals in most areas of nursing. Nursing in paediatrics and obstetrics have not interested me, but I have experienced the other side of paediatrics as a young teenager and of obstetrics as a young mom. Of course I did work in both areas in my nurse training years. Despite the little exposure in these two fields, I have cared for individuals from 1 1/2 years old to 108 years old. All along this age continuum, each person has required different care, but with the same attitude of nursing. Sick people need to feel safe, emotionally and physically. Each age, each level of ability, and many times each sort of vocabulary used, will involve different lengths of time. This is especially true for the very young, the very old, people new to being ill, chronic illnesses including addiction and mental health, surgical as opposed to medical issues, end of life concerns. Of course there are new moms, again including addiction and mental health concerns. Bedside nursing will require either more or less time involvement. Community referrals, and therefore community nursing, also requires more or less time involvement. In my present employment in Addictions Nursing at the Detox level, our age range is 19 years to over 80 years old. As the age increases, medical issues increase, infirmity increases and maybe also cognition may decrease. Nursing care requires constant shifting into what models of care are effective for each client (there’s that client word). Is this more psychiatric, geriatric, just out of adolescence or someone who is basically healthy? What nutritional issues need to be addressed?

Going in depth about the attitude of nursing has spoken to my inner beliefs and my personal nursing practice. As nurses we are challenged to fit the mold of whatever system we are in, what ever business model is in place, and unfortunately how some in medicine still see the role of nurses. That role is too often a ‘do as you are told’ attitude rather than a collaborative attitude. In any hospital, treatment centre or clinic nurses work in, our attitudes and practices of nursing mesh with best practices, the mission statement from the board room, as well as policies and protocols to provide emotional and physical safety our patients. When they do not mesh, it is a huge challenge for nurses to work with their patients, or clients, in the manner they were trained to and believe in. But we do it. 

We provide skilled, compassionate nursing care without worrying about recognition. On a daily basis. Recognition is not part of a genuine nursing attitude, but it feels so good when it comes. It comes with a hand lettered card saying Thank you. Saying…you saved my life.  Saying….I remember when you walked me through that anxiety attack.  Saying…Thank you for taking care of my daughter ….my son….my dad….my mom.  And so many other sayings each of us, individually or as a group, hear. Little threads outside of the larger health care settings telling us that the nursing practice we do is more important than any political health crises in the news.

Nurses do more than take blood pressures, record data on computers and give medications. We support each individual in the throes of their acute illness, in their abilities to step forward in their own recovery from illness, educate them about individual health care issues. We are not technology, we use technology. We are not secretaries, we do some documentation. We are not specifically pharmaceutically minded, we administer physician ordered medications. We do not formally diagnose our patients, we do recognize signs and symptoms. We save lives and we escort individuals through their final days. We support individuals as they move through a variety of severe diseases and conditions.

I am so very grateful to have worked with so many different nurses and in different areas over the last 50 years. You have each contributed such great depth to this profession! Thank you all for your wisdom, your support and your willingness to spend time and to deeply care for your patients.

“Nursing is an art…It is one of the Fine Arts: 
I had almost said the finest of Fine Arts.”
~ Florence Nightingale

Monday, May 9, 2016

Nurse’s Week 2016 May 06 - May 12

Now that Mother’s Day celebrations have quieted, I take a turn at celebrating all nurses out there ~ Have been out there, not just in hospitals, but in clinics, in schools, in the streets following directions of physicians in the same health care systems.

Just as importantly, in the world of  24/7 health care, nurses follow the directions and experience and support of instructors, mentors, relatives throughout generations ~ always caring for those that cannot care for themselves
Challenging
Disease    Debility    Brokenness    Trauma

Welcoming Newness
Infants    Babies     Children

         Honouring young and old
Passing from this life
Healing
Minds    Bodies     Spirits

“Our job as nurses is to cushion the sorrow and celebrate the job, 
everyday, while we are ‘just doing our jobs’.
~ Christine Belle

Saturday, February 8, 2014

Where is the Value?


They shook hands with devils not really known.
Would a fist bump have kept them apart?

How many souls have gone down before
not knowing addiction’s true heart?

A handshake is open and often seems true
Fist bumps are closed hand to hand.

Disease doesn’t care whether open or closed
and is false about what’s truly planned

Months, weeks or years go rolling along
as addiction lies dormant and still.

When demons and devils stir once again,
active addiction invades with it’s chill.

Where is the value in this fierce disease?
Only those clean and sober can know.

“Addiction isn’t about using drugs. It’s about 
what the drug does to your life.”
~ Enock Maregesi

***Author’s note:  the above quotation is true of alcohol as well.

Thursday, July 18, 2013

It's Only a Play






Time: noon

Place: a detox centre in an unknown city
He asked:  Where do all these people come from?
She said:  For a disease that is never discussed there sure are a lot of people with this disease of addiction!
(cue laughter)
(fade to black)



“Theater is, of course, a reflection of life. Maybe we have to 
improve life before we can hope to improve theater.”
~ William Ralph Inge

Tuesday, July 16, 2013

Unleashed


An addiction theme, I thought to myself ~ to share what little I know about another chronic disease.

Using words of others that have gone before who taught lessons learned in the hardest of schools.

Siblings, parents, relatives and friends, and so many others, who only wanted to be normal, have died of this disease of addiction.

Each day, professionals care for folks that are caught,
that want out of a trap that they have come to know, love and hate.

I wonder ~ why do any of us try each day to beat back
a disease that we may never know from the inside?

Because each day ~ there is one ~ or maybe there’s two ~ or more
that say to us ‘I need help’ as though their needs we surely will know.

In our care are folks we have known for many a passing year,
at the beginning and sometimes through each relapse, each time struggling to stand.

If there was a wall of names to honour those that have gone before,
how wide and tall and long would it have to be?

What is this ‘disease’ that we speak of?
It is not in a bottle, a needle, a powder, or a ‘funny cigarette.

This ‘disease’ is in our very brains, bodies and souls.
The substance merely unleashes deep devastation.

“It’s probably weird to think about an addiction like it’s a sentient being,
but that’s how it feels. Like it’s something living inside you. Something
you can’t get rid of because killing it means killing you.”
~ Ellen Hopkins, Identical