....sit brightly on my desk,
glittering beads and shells
spilling around them,
reminding me daily that
when I choose,
they are always mine.
Epilepsy is always with me.
I carry it gently in my brain.
Epilepsy holds not promises of
riches, fame or good fortune.
Epilepsy's promises to me:
loud gasping for air,
broken teeth,
confusion.
Active epilepsy has no hope.
Active epilepsy has no wisdom.
But ~ epilepsy's value is in lessons learned
from churning turmoil
thrown mercilessly through and around me.
Hope is mine for the taking.
Hope that today will be another seizure free day.
Wisdom is mine to learn.
Wisdom will show me how
to make and keep promises to myself and others
I may never be rich or famous but
wisdom and hope show me much good fortune.
My promise to myself each day is that
I will be kind to myself and those around me.
To the best of my ability,
I will not allow epilepsy to visit
violence, injury or confusion upon me or thee.
"Do what you can, with what you have, where you are."
~ Theodore Roosevelt
Author's note: Edited January 28, 2024
Author's post-script: August 15, 2024
“I will not allow epilepsy to visit violence, injury or confusion…..” That’s a very bold statement! There are times when I do not have a choice. What I have learned is that the choices I make can make a difference in how often seizure activity occurs. I am fortunate to have ‘the easiest form of epilepsy to treat’ - a comment from my neurologist in another city. It still has its unpredictability. I may have a time frame for a possible seizure, and know the triggers that create the potential, but I don’t know the actual moment when a seizure may occur. Will it be when I am walking across the floor? When I have a fresh cup of coffee in my hand? When I am washing my face? I can only avoid my triggers and pay attention in the time frame that seizures occur.
1 comment:
Such eloquence and again words we all can use to move through difficulties and life itself.
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