Post-ictal: a phase to follow a seizure ~ an altered state of consciousness lasting a few minutes or much longer ~ for me, up to a day and into the next.
Besides confusion:
Incredibly sad and wildly erratic emotions
Exhibited outwardly?
Definitely occurring inwardly.
~~~~~
The following poem was written many years from my last seizure.
Consistent with my feelings following seizures, I wonder ~
Do I share such feelings with others?
~~~~~
Reality Check
I have crept up to the edge.
Many years of comfortable struggle,
world looking ordered and right,
listening to words
harmonious, pleasing to the ear.
Looking past facades ~
Willing individuals racing from homes
Entering society’s churning, frightening systems.
Hearing past the Musak
Words and actions out of sync
Awareness of this reality frightens me
Constrictions
Regulations
Responsibilities!!
Rose–coloured glasses slip and fall off.
Images ~ blurry, yet very real,
I feel
paralyzed
afraid to move
right or left
forward or back
Still afraid of other’s reactions to and around me.
I want to express myself differently than the ‘system’ allows.
How do I feel safe?
How can I believe in my own life?
How can I believe in the lives of others?
I stand still slowly,
looking in all directions,
try to move slowly.
Cautiously estimate my next action.
My patience with the slowness of ‘the process’
wearing thin.
Seeing that I am here
all else
out there,
over there
untouched by me until
I feel courageous enough to
touch
decide
act
move forward
No longer at the base of a chaotic storm full of destruction
Now in the Eye where all is calm
movement independent from the chaos of others.
Time to think before acting
Movement in sync with a Higher System.
Susan Ward
Nov.2006
"The soul would have no rainbow
had the eyes no tears."
~ John Vance Cheney
Author's note: August 30, 2012
Never diagnosed with depression, but working in psychiatry, I have heard about, read about and witnessed the symptoms of depression. Not just sadness, and not only sadness. Listlessness, lack of interest, apathy. Those are the ones that I can relate to in my life. Until I feel angered about something and then my energy come roaring back and I can get on with my life. Another is suicidal ideation: there has been suicide in my family. I have committed to not going there so many times if I feel that black hole looming. I speak it out loud. ‘I’m not going there!” The depression may not completely subside, but suicidal ideation has been swept off the table.
Author's note: Edited and revised August 13, 2024
4 comments:
So Beautiful Sue.
Thank you Kate.
I'm so thankful for you (and for me) that you have the words - wonderful words - to express the anxieties and frustrations that come with epilepsy. They surely help others who live with the condition and inform those of us who don't. You are an inspiration. Aussies would say 'Onya Sue' and Kiwis might say 'Sweet as!"
J. xx
You are so very kind and so very appreciated.
Thank you.
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