Water colour by Jason Ward |
Nursing school
Marriage
Epilepsy in the form that I have ~ tonic/clonic seizures (what used to be called grand mal) are terrifying because they involve
Marriage
Motherhood
Epilepsy
This is the order they arrived in, all crammed in the span of four years.
But... no pressure! Just deal with it.
Diagnosis:
from medical history and an EEG
Prescriptions:
two medications.
No time in this life for the seizures that would follow
unexpected
unannounced.
From infancy onward, my children witnessed my violent seizures.
My very young son brought me my medications.
My husband worried.
My whole family worried.
Close friends were pulled into the fray.
Stubbornly, I shouted to those that cared for me ~ "I'm NOT going to have a seizure!"
Fear of the seizures is not in my memory,
Only embarrassment when waking up
on the floor,
or on the couch
with family or friends over me asking if I was all right
unconsciousness
violent convulsing tremors, and
loud stertorous breathing,
skin colour dark and dusky as powerful neck muscles cut my airway off.
“It was during the night when she had a seizure
facedown on the pillow,....she passed on that way.
That’s a very, very small percentage. It’s more important
to let people know that epilepsy is not fatal.”
~ John O’Hurley
2 comments:
I can't tell you how proud I am of you sister. You live your life with dignity and grace. You are educated, an eloquent writer, and a loving person. You understand disease, and work to help others everyday. xo
Thank you Kate. I am as proud of you..xo
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